Zaklada za rijetke bolesti jetre
https://rijetkebolestijetre.optin.com/newsletter/awlist6759243
2026-04-01T06:01:11-04:00
Predavanje Endoskopski zahvati I Psihološka podrška
2026-04-01T06:01:11-04:00
2026-04-01T06:20:37-04:00
tag:rijetkebolestijetre.optin.com,2021:Post/29506433
Novosti u travnju Zaklada za rijetke bolesti jetre pruža edukaciju, podršku i zagovaranje za oboljele od rijetkih bolesti jetre, raka jetre, osobe…
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<a class="aw-image-link" href="https://www.rijetkebolestijetre.hr/" rel="noopener noreferrer" style="color: rgb(52, 152, 219);"><img alt="Zaklada za rijetke bolesti jetre" class="model" height="123" src="https://hostedimages-cdn.aweber-static.com/MjI3NzcyOA==/optimized/9016358f0c364843a85f3eae9fe9a271.png" style="display: block; height: 123px; width: 270px;" width="270"/></a>
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<div class="text-element paragraph"><p style="text-align: center; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"><i>Zaklada za rijetke bolesti jetre pruža edukaciju, podršku i zagovaranje za oboljele od rijetkih bolesti jetre, raka jetre, osobe koje su transplantirale jetru i njihove obitelji s ciljem poboljšanja kvalitete života i osiguravanja pravovremenog pristupa odgovarajućoj zdravstvenoj skrbi.</i></p></div></div>
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<div class="text-element paragraph"><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;">Nije šala kada kažemo da vam humor i smijeh mogu pomoći da se lakše nosite sa strahom i brigama povezanima sa bolešću jetre. Kako se nasmijati na svoj račun pročitajte na poveznici ispod. </p></div></div>
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<div class="text-element paragraph"><p style="text-align: center; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: center; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"><span style="color:#E21220;"><strong>Poziv na online predavanje ”Rak jetre”, 9.4.2026. u 18 sati</strong></span></p></div></div>
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<div class="text-element paragraph"><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><h1 style="text-align:center;"><a href="https://www.rijetkebolestijetre.hr/predavanje-rak-jetre/#" rel="noopener noreferrer" style="color: rgb(52, 152, 219);" target="_blank">Pozivamo vas na predavanje ”Rak jetre”, 9.4.2026. u 18 sati</a></h1><p style="color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;">Rak jetre često se otkrije kasno, a put do dijagnoze i liječenja za mnoge je pacijente pun neizvjesnosti. Hepatocelularni karcinom (HCC) i kolangiokarcinom (CCA) dva su najčešća oblika raka jetre, ali i bolesti o kojima se u javnosti još uvijek premalo govori.</p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align:
justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;">Na ovom predavanju govorit ćemo o tome što su HCC i CCA, koji su rizični čimbenici za njihov razvoj, kako se prepoznaju prvi znakovi bolesti te koje su mogućnosti liječenja danas dostupne. Poseban naglasak bit će na važnosti ranog otkrivanja, praćenja osoba s bolestima jetre te razumijevanja puta pacijenta kroz zdravstveni sustav.</p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding:
0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;">Predavanje će održati <strong>dr. sc. Domina Kekez, dr. med.</strong>, spec. internističke onkologije, Klinički bolnički centar Zagreb, a održat će se <strong>9. travnja u 18:00 sati</strong> putem Zoom platforme.</p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify;
color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;">Predavanje je namijenjeno pacijentima, članovima obitelji, ali i svima koji žele bolje razumjeti ove ozbiljne bolesti jetre i izazove s kojima se oboljeli suočavaju.</p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p></div></div>
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<div class="text-element paragraph"><h1 style="text-align:center;"><span style="color:#E21220;font-size:18px;">Psihološka podrška – online otvorena grupa 7.4.2026.</span></h1></div></div>
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<a class="aw-image-link" href="https://www.rijetkebolestijetre.hr/psiholoska-podrska-online-otvorena-grupa-7-4-2026/" rel="noopener noreferrer" style="color: rgb(52, 152, 219);"><img alt="" class="model" height="750" src="https://hostedimages-cdn.aweber-static.com/MjI3NzcyOA==/optimized/892db9a465834a9cbbd8530427576adf.png" style="display: block; height: 750px; width: 600px;" width="600"/></a>
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<div class="text-element paragraph"><p style="color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;">Za sve osobe koje žive s rijetkim bolestima jetre, rakom jetre te osobama koje žive s transplantiranom jetrom ili čekaju transplantaciju, dostupna je mjesečna grupna psihološka podrška kao siguran prostor za razgovor, razmjenu iskustava i međusobnu
podršku.</p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;">Grupa se održava jednom mjesečno u online formatu putem Zoom platforme, a broj sudionika ograničen je na najviše 10 osoba po susretu.</p><p style="color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: center; color:
rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"><span style="color:#E21220;">Više informacija i prijave pronađite </span><a href="https://www.rijetkebolestijetre.hr/psiholoska-podrska-online-otvorena-grupa-7-4-2026/" rel="noopener noreferrer" style="color: rgb(52, 152, 219);" target="_blank"><span style="color:#E21220;"><strong>OVDJE</strong></span></a><span style="color:#E21220;">.</span> </p></div></div>
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<div class="text-element paragraph"><p style="text-align: center; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"><span style="color:#E21220;"><strong>Klub pacijenata</strong></span></p></div></div>
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<div class="text-element paragraph"><p style="color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;">U travnju se družimo online u<strong> srijedu 29.4.2025. u 18 sati.</strong></p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28, 28);
line-height: 1.5em; padding: 0px; margin: 0px;">Dođite i upoznajte druge koji žive s rijetkim bolestima jetre, rakom jetre i transplantiranom jetrom. </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;">Svi upisani u Klub pacijenata dobit će poveznicu za spajanje na e-mail adresu s kojom su se registrirali dan prije održavanja
druženja.</p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p></div></div>
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<div class="text-element paragraph"><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;">Ako se još niste uključili u Klub, a htjeli biste upoznati druge osobe koje boluju od rijetkih bolesti jetre ili nekoga tko čeka ili je prošao transplantaciju jetre pridružite nam se na online druženju. </p><p style="text-align:
justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;">Klub pacijenata je mjesto gdje imate priliku razmijeniti iskustva s drugima koji prolaze isto što i vi. Mogu nam se pridružiti i članovi obitelji.😀</p><p style="color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p></div></div>
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<div class="text-element paragraph"><p style="font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;">Snimke dosadašnjih predavanja pronađite na našem YouTube kanalu!</p></div></div>
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<div class="text-element paragraph"><p style="text-align: center; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"><strong>Uključite se u rad Zaklade za rijetke bolesti jetre!</strong></p><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;">Rad
Zaklade ne čine samo projekti i aktivnosti, već ga čine ljudi koji daruju svoje vrijeme, znanje, kontakte ili financijsku podršku. </p><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px;
line-height: 1.25em;"><strong>Možete nam se pridružiti na različite načine:</strong></p><ul><li style="text-align:justify;">volontiranjem u aktivnostima Zaklade,</li><li style="text-align:justify;">možete podijeliti vlastitu priču ili stručno znanje,</li><li style="text-align:justify;">donacijom koja koja će omogućuiti podršku oboljelima i njihovim obiteljima,</li><li style="text-align:justify;">dijeliti naše objave na društvenim mrežama,</li><li style="text-align:justify;">uključiti se u grupe
podrške i istraživanja,</li><li style="text-align:justify;">povezati nas s novim partnerima koji mogu pomoći.</li></ul><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;">Javite nam se na e-mail <a href="mailto:info@rijetkebolestijetre.hr" style="color: rgb(52, 152,
219);">info@rijetkebolestijetre.hr</a> ako želite doprinijeti našoj misiji! </p><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p></div></div>
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<div class="text-element paragraph"><p style="font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p><p style="font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;">Svi smo barem jednom bili kod liječnika, dobili nalaz koji nas je zabrinuo i osjetili strah kad ne znaš što slijedi.</p><p style="font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"><br/>Za oboljele od
rijetkih bolesti jetre i transplantirane taj osjećaj traje svaki dan.</p><p style="font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p><p style="font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;">Vaša donacija omogućuje razgovore, povezuje oboljele i donosi znanje koje daje sigurnost, te stvara podršku koja traje. <img class="image_resized" src="https://hostedimages-cdn.aweber-static.com/MjI3NzcyOA==/original/7f12429816e142588a01d95f868d10e2.png" style="width:15px;"/></p><p style="font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p><p style="font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"><strong>Donirajte danas</strong>: <a href="https://www.rijetkebolestijetre.hr/podrska-koja-traje/?fbclid=IwZXh0bgNhZW0CMTAAYnJpZBEwbE1tbU9NNE1lcTh4R0QxS3NydGMGYXBwX2lkEDIyMjAzOTE3ODgyMDA4OTIAAR7e6a1grsMPtOIm4GLLzVV7XFAsHTGv2-1LkgWw0hRvBAHKMGqj0-7Uw9-jCQ_aem_BUlBZXBHaWtBob0S1U40qg" rel="noopener noreferrer" style="color: rgb(52, 152, 219);" target="_blank"><span style="color:#1155CC;">https://www.rijetkebolestijetre.hr/podrska-koja-traje/</span></a>.</p><p style="font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p><p style="font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;">Skenirajte QR kod putem moblinog bankarstva za uplatu donacije.</p><figure class="image image_resized" style="width:231px;"><img alt="" src="https://www.rijetkebolestijetre.hr/wp-content/uploads/2025/10/qrcode-a02eada1-b0df-4d69-a0f4-f1e6bbd5d095.png"/></figure></div></div>
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Predavanje Endoskopski zahvati I Psihološka podrška
2026-03-02T10:00:14-05:00
2026-03-02T10:00:14-05:00
tag:rijetkebolestijetre.optin.com,2021:Post/29288961
Što vas čeka u ožujku Zaklada za rijetke bolesti jetre pruža edukaciju, podršku i zagovaranje za oboljele od rijetkih bolesti jetre, raka jetre, osobe…
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<a class="aw-image-link" href="https://www.rijetkebolestijetre.hr/" rel="noopener noreferrer" style="color: rgb(52, 152, 219);"><img alt="Zaklada za rijetke bolesti jetre" class="model" height="123" src="https://hostedimages-cdn.aweber-static.com/MjI3NzcyOA==/optimized/9016358f0c364843a85f3eae9fe9a271.png" style="display: block; height: 123px; width: 270px;" width="270"/></a>
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<div class="text-element paragraph"><p style="text-align: center; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"><i>Zaklada za rijetke bolesti jetre pruža edukaciju, podršku i zagovaranje za oboljele od rijetkih bolesti jetre, raka jetre, osobe koje su transplantirale jetru i njihove obitelji s ciljem poboljšanja kvalitete života i osiguravanja pravovremenog pristupa odgovarajućoj zdravstvenoj skrbi.</i></p></div></div>
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<div class="text-element paragraph"><p style="text-align: center; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: center; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"><span style="color:#E21220;"><strong>Poziv na online predavanje ”Endoskopski zahvati kod rijetkih bolesti jetre”, 4.3.2026. u 18 sati</strong></span></p></div></div>
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<a class="aw-image-link" href="https://www.rijetkebolestijetre.hr/predavanje-endoskopski-zahvati-kod-rijetkih-bolesti-jetre/" rel="noopener noreferrer" style="color: rgb(52, 152, 219);"><img alt="Poziv na online predavanje ”Endoskopski zahvati kod rijetkih bolesti jetre”" class="model" height="750" src="https://hostedimages-cdn.aweber-static.com/MjI3NzcyOA==/optimized/3ff61935aa0d4e9fae5f627f1a026c49.png" style="display: block; height: 750px; width:
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<div class="text-element paragraph"><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"><strong>Pozivamo vas na online predavanje ”Endoskopski zahvati kod rijetkih bolesti jetre”</strong> ćemo održati <strong>4.3.2026. u 18 sati</strong> putem platforme Zoom.</p><p style="text-align: justify; color: rgb(28, 28, 28);
line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;">Predavanje će održati <strong>doc. dr. sc. Mirjana Kalauz, dr. med.</strong>, specijalistica gastroenterologije i hepatologije, Zavod za gastroenterologiju i hepatologiju, KBC Zagreb.</p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color:
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<div class="text-element paragraph"><h1 style="text-align:center;"><span style="color:#E21220;font-size:18px;">Psihološka podrška – online otvorena grupa 9.3.2026.</span></h1></div></div>
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<a class="aw-image-link" href="https://www.rijetkebolestijetre.hr/psiholoska-podrska-online-otvorena-grupa-9-3-2026/" rel="noopener noreferrer" style="color: rgb(52, 152, 219);"><img alt="" class="model" height="503" src="https://hostedimages-cdn.aweber-static.com/MjI3NzcyOA==/optimized/0e2822dd8b8a40ebb6b765c320934faf.png" style="display: block; height: 503px; width: 600px;" width="600"/></a>
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<div class="text-element paragraph"><p style="color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;">Pokrećemo mjesečnu online otvorenu grupu psihološke podrške namijenjenu osobama koje žive s rijetkim bolestima jetre, rakom jetre te osobama koje žive s transplantiranom jetrom ili čekaju transplantaciju. </p><p style="text-align: justify; color:
rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;">Grupa je siguran prostor za razgovor, razmjenu iskustava i međusobnu podršku pod vodstvom kliničkih psihologinja, a prvi susret održat će se <strong>9. ožujka 2026.</strong> putem Zoom platforme.</p><p style="color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: center;
color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"><span style="color:#E21220;">Više informacija i prijave pronađite </span><a href="https://www.rijetkebolestijetre.hr/psiholoska-podrska-online-otvorena-grupa-9-3-2026/" rel="noopener noreferrer" style="color: rgb(52, 152, 219);" target="_blank"><span style="color:#E21220;"><strong>OVDJE</strong></span></a><span style="color:#E21220;">.</span> </p></div></div>
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<div class="text-element paragraph"><p style="text-align: center; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"><span style="color:#E21220;"><strong>Klub pacijenata</strong></span></p></div></div>
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<div class="text-element paragraph"><p style="color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;">U ožujku se družimo online u<strong> srijedu 25.3.2025. u 18 sati.</strong></p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28, 28);
line-height: 1.5em; padding: 0px; margin: 0px;">Ovoga puta naša <strong>gošća</strong> će biti <strong>Anđela Begonja, magistra farmacije, spec. kliničke farmacije</strong> iz tima za transplantaciju jetre KBC-a Zagreb. S našom gošćom razgovarat ćemo o dodatcima prehrani i kako pravilno uzimati lijekove.</p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em;
padding: 0px; margin: 0px;">Svi upisani u Klub pacijenata dobit će poveznicu za spajanje na e-mail adresu s kojom su se registrirali dan prije održavanja druženja.</p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p></div></div>
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<a class="aw-image-link" href="https://www.rijetkebolestijetre.hr/klub-pacijenata/" rel="noopener noreferrer" style="color: rgb(52, 152, 219);"><img alt="" class="model" height="750" src="https://hostedimages-cdn.aweber-static.com/MjI3NzcyOA==/optimized/2fc076ce280345b6a44e040a64c93373.png" style="display: block; height: 750px; width: 600px;" width="600"/></a>
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<div class="text-element paragraph"><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;">Ako se još niste uključili u Klub, a htjeli biste upoznati druge osobe koje boluju od rijetkih bolesti jetre ili nekoga tko čeka ili je prošao transplantaciju jetre pridružite nam se na online druženju. </p><p style="text-align:
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<a href="https://www.youtube.com/@rijetkebolestijetre/" style="color: rgb(255, 255, 255); font-family: Helvetica, Arial, sans-serif; font-weight: 600; text-decoration: none;">Snimka predavanja</a>
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<div class="text-element paragraph"><p style="text-align: center; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"><strong>Uključite se u rad Zaklade za rijetke bolesti jetre!</strong></p><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;">Rad
Zaklade ne čine samo projekti i aktivnosti, već ga čine ljudi koji daruju svoje vrijeme, znanje, kontakte ili financijsku podršku. </p><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px;
line-height: 1.25em;"><strong>Možete nam se pridružiti na različite načine:</strong></p><ul><li style="text-align:justify;">volontiranjem u aktivnostima Zaklade,</li><li style="text-align:justify;">možete podijeliti vlastitu priču ili stručno znanje,</li><li style="text-align:justify;">donacijom koja koja će omogućuiti podršku oboljelima i njihovim obiteljima,</li><li style="text-align:justify;">dijeliti naše objave na društvenim mrežama,</li><li style="text-align:justify;">uključiti se u grupe
podrške i istraživanja,</li><li style="text-align:justify;">povezati nas s novim partnerima koji mogu pomoći.</li></ul><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;">Javite nam se na e-mail <a href="mailto:info@rijetkebolestijetre.hr" style="color: rgb(52, 152,
219);">info@rijetkebolestijetre.hr</a> ako želite doprinijeti našoj misiji! </p><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p></div></div>
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<a class="aw-image-link" href="https://www.rijetkebolestijetre.hr/podrska-koja-traje/" rel="noopener noreferrer" style="color: rgb(52, 152, 219);"><img alt="" class="model" height="503" src="https://hostedimages-cdn.aweber-static.com/MjI3NzcyOA==/optimized/8822fff196c54d9e9fd58837af3cb5eb.png" style="display: block; height: 503px; width: 600px;" width="600"/></a>
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<div class="text-element paragraph"><p style="font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p><p style="font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;">Svi smo barem jednom bili kod liječnika, dobili nalaz koji nas je zabrinuo i osjetili strah kad ne znaš što slijedi.</p><p style="font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"><br/>Za oboljele od
rijetkih bolesti jetre i transplantirane taj osjećaj traje svaki dan.</p><p style="font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p><p style="font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;">Vaša donacija omogućuje razgovore, povezuje oboljele i donosi znanje koje daje sigurnost, te stvara podršku koja traje. <img class="image_resized" src="https://hostedimages-cdn.aweber-static.com/MjI3NzcyOA==/original/7f12429816e142588a01d95f868d10e2.png" style="width:15px;"/></p><p style="font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p><p style="font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"><strong>Donirajte danas</strong>: <a href="https://www.rijetkebolestijetre.hr/podrska-koja-traje/?fbclid=IwZXh0bgNhZW0CMTAAYnJpZBEwbE1tbU9NNE1lcTh4R0QxS3NydGMGYXBwX2lkEDIyMjAzOTE3ODgyMDA4OTIAAR7e6a1grsMPtOIm4GLLzVV7XFAsHTGv2-1LkgWw0hRvBAHKMGqj0-7Uw9-jCQ_aem_BUlBZXBHaWtBob0S1U40qg" rel="noopener noreferrer" style="color: rgb(52, 152, 219);" target="_blank"><span style="color:#1155CC;">https://www.rijetkebolestijetre.hr/podrska-koja-traje/</span></a>.</p><p style="font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p><p style="font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;">Skenirajte QR kod putem moblinog bankarstva za uplatu donacije.</p><figure class="image image_resized" style="width:231px;"><img alt="" src="https://www.rijetkebolestijetre.hr/wp-content/uploads/2025/10/qrcode-a02eada1-b0df-4d69-a0f4-f1e6bbd5d095.png"/></figure></div></div>
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<div class="text-element paragraph"><p style="text-align: center; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;">Pratite nas putem kanala na društvenim mrežama!</p><p style="text-align: center; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p></div></div>
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Predavanje Kronične bolesti jetre i trudnoća I Klub pacijenata
2026-01-20T06:00:10-05:00
2026-01-20T06:00:10-05:00
tag:rijetkebolestijetre.optin.com,2021:Post/28984036
Uključi se u rad Zaklade za rijetke bolesti jetre! Zaklada za rijetke bolesti jetre pruža edukaciju, podršku i zagovaranje za oboljele od rijetkih…
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<span class="aw-preheadertext" style="color: #ffffff; display: none; font-size: 0; line-height: 0; margin: 0; padding: 0; visibility: hidden;">Uključi se u rad Zaklade za rijetke bolesti jetre! </span><div class="aw-preheaderspacer" style="display: none; max-height: 0; overflow:
hidden;">
</div>
<center>
<div class="aw-email-document aw-SYbIk"><div align="center"><div class="containerbox">
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<td style="border-spacing: 0px;">
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<td style="border-spacing: 0px;">
<div class="mains" style="text-align: left; font-size: 18px; color: rgb(28, 28, 28); padding: 0px; line-height: 1.5em;">
<div class="region"><div><table class="row aw-stack" role="presentation" style="width: 100%; border: medium; border-spacing: 0px;"><tbody><tr style="border-spacing: 0px;"><td bgcolor="#FFFFFF" class="container" style="border-radius: 0px; padding: 10px 20px; width: 100%; border-spacing: 0px;" valign="top" width="100%"><div class="definition-parent"><!--Text Element-->
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<tbody><tr style="border-spacing: 0px;">
<td align="center" style="padding: 20px 0px 12px; border-spacing: 0px;">
<a class="aw-image-link" href="https://www.rijetkebolestijetre.hr/" rel="noopener noreferrer" style="color: rgb(52, 152, 219);"><img alt="Zaklada za rijetke bolesti jetre" class="model" height="123" src="https://hostedimages-cdn.aweber-static.com/MjI3NzcyOA==/optimized/9016358f0c364843a85f3eae9fe9a271.png" style="display: block; height: 123px; width: 270px;" width="270"/></a>
</td>
</tr>
</tbody></table></div></div>
</td></tr></tbody></table>
<table class="row aw-stack" role="presentation" style="width: 100%; border: medium; border-spacing: 0px;"><tbody><tr style="border-spacing: 0px;"><td class="container" style="border-radius: 0px; padding: 10px 0px 30px; width: 100%; border-spacing: 0px;" valign="top" width="100%"><div class="definition-parent"><!--Text Element-->
<div class="text-element paragraph"><p style="text-align: center; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"><i>Zaklada za rijetke bolesti jetre pruža edukaciju, podršku i zagovaranje za oboljele od rijetkih bolesti jetre, raka jetre, osobe koje su transplantirale jetru i njihove obitelji s ciljem poboljšanja kvalitete života i osiguravanja pravovremenog pristupa odgovarajućoj zdravstvenoj skrbi.</i></p></div></div>
<div class="definition-parent">
<div class="divider">
<table cellpadding="0" cellspacing="0" role="presentation" style="border: medium; border-spacing: 0px;" width="100%">
<tbody>
<tr style="border-spacing: 0px;">
<td class="divider-container" style="padding: 10px 0px; border-spacing: 0px;">
<table role="presentation" style="border-width: 1px medium medium; border-style: solid none none; border-color: rgb(222, 224, 232) currentcolor currentcolor; border-collapse: collapse; border-image: none; border-spacing: 0px;" width="100%">
<tbody>
<tr style="border-spacing: 0px;">
<td style="border-spacing: 0px;" width="100%"></td>
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</tbody>
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<div class="text-element paragraph"><p style="text-align: center; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: center; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"><span style="color:#E21220;"><strong>Poziv na online predavanje Kronične bolesti jetre i trudnoća – </strong></span></p><p style="text-align: center; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"><span style="color:#E21220;"><strong>4.2.2026. u 18 sati</strong></span></p></div></div>
<div class="definition-parent"><!--Text Element-->
<div class="text-element paragraph"><p style="text-align: center; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p></div></div>
<div class="definition-parent">
<div class="divider">
<table cellpadding="0" cellspacing="0" role="presentation" style="border: medium; border-spacing: 0px;" width="100%">
<tbody>
<tr style="border-spacing: 0px;">
<td class="divider-container" style="padding: 10px 0px; border-spacing: 0px;">
<table role="presentation" style="border-width: 1px medium medium; border-style: solid none none; border-color: rgb(222, 224, 232) currentcolor currentcolor; border-collapse: collapse; border-image: none; border-spacing: 0px;" width="100%">
<tbody>
<tr style="border-spacing: 0px;">
<td style="border-spacing: 0px;" width="100%"></td>
</tr>
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</table>
</td>
</tr>
</tbody>
</table>
</div>
</div>
<div class="definition-parent"><span><table align="center" cellspacing="0" class="floated-none" role="presentation" style="float: none; text-align: center; border: medium; border-spacing: 0px;" width="100%">
<tbody><tr style="border-spacing: 0px;">
<td align="center" style="padding: 0px; border-spacing: 0px;">
<a class="aw-image-link" href="https://www.rijetkebolestijetre.hr/predavanje-kronicne-bolesti-jetre-i-trudnoca/" rel="noopener noreferrer" style="color: rgb(52, 152, 219);"><img alt="Predavanje ”Kronične bolesti jetre i trudnoća”, 4.2.2026. u 18 sati" class="model" height="750" src="https://hostedimages-cdn.aweber-static.com/MjI3NzcyOA==/optimized/82c3c6b44eee418cbe7d3e4ecf0475c5.png" style="display: block; height: 750px; width: 600px;" width="600"/></a>
</td>
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</tbody></table></span></div>
<div class="definition-parent"><!--Text Element-->
<div class="text-element paragraph"><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"><strong>Pozivamo vas na online predavanje “Kronične bolesti jetre i trudnoća” koje će održati dr. sc. Iva Košuta, dr. med.</strong>, specijalistica gastroenterologije, Zavod za intenzivnu medicinu, KBC Zagreb.</p><p style="text-align:
justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;">Predavanje će se održati u srijedu <strong>4.2.2026. u 18 sati</strong> putem platforme Zoom.</p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin:
0px;">Trudnoća uz kroničnu bolest jetre donosi dodatna pitanja, dileme i često neizvjesnost. Mnoge žene s dijagnozom kronične ili rijetke bolesti jetre pitaju se je li trudnoća moguća, kako će bolest utjecati na tijek trudnoće i kakav je utjecaj trudnoće na njihovo zdravlje.</p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;">Ovo
predavanje usmjereno je na trudnoću u kontekstu kroničnih (često rijetkih) bolesti jetre, poput:</p><ul><li style="text-align:justify;">autoimunih bolesti jetre (autoimuni hepatitis, primarni bilijarni kolangitis, primarni sklerozirajući kolangitis)</li><li style="text-align:justify;">Wilsonova bolest</li><li style="text-align:justify;">trudnoće kod žena s uznapredovalom kroničnom bolešću jetre ili cirozom.</li></ul><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em;
padding: 0px; margin: 0px;">Govorit ćemo o izazovima i specifičnostima koje ove dijagnoze donose u planiranju i praćenju trudnoće, ali i o mogućnostima, jer trudnoća je u mnogim slučajevima moguća uz odgovarajući nadzor i individualiziran pristup.</p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;">Predavanje je namijenjeno
oboljelima, članovima obitelji i svima koji žele znati više o ovoj rijetkoj bolesti.</p></div></div>
<div class="definition-parent"><!--Button-->
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<!--[if mso]> <![endif]-->
<a href="https://www.rijetkebolestijetre.hr/predavanje-kronicne-bolesti-jetre-i-trudnoca/" style="color: rgb(255, 255, 255); font-family: Helvetica, Arial, sans-serif; font-weight: 600; text-decoration: none;">Prijavite se!</a>
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</center></div>
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<div class="text-element paragraph"><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p></div></div>
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<table cellpadding="0" cellspacing="0" role="presentation" style="border: medium; border-spacing: 0px;" width="100%">
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<div class="text-element paragraph"><p style="text-align: center; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"><span style="color:#E21220;"><strong>Klub pacijenata</strong></span></p></div></div>
<div class="definition-parent">
<div class="divider">
<table cellpadding="0" cellspacing="0" role="presentation" style="border: medium; border-spacing: 0px;" width="100%">
<tbody>
<tr style="border-spacing: 0px;">
<td class="divider-container" style="padding: 10px 0px; border-spacing: 0px;">
<table role="presentation" style="border-width: 1px medium medium; border-style: solid none none; border-color: rgb(222, 224, 232) currentcolor currentcolor; border-collapse: collapse; border-image: none; border-spacing: 0px;" width="100%">
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<div class="definition-parent"><!--Text Element-->
<div class="text-element paragraph"><p style="color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;">U siječnju se družimo online u<strong> srijedu 28.1.2025. u 18 sati.</strong></p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28, 28);
line-height: 1.5em; padding: 0px; margin: 0px;">Ovoga puta imat ćemo gošću <strong>medicinsku sestru Vlatku Rafaj</strong> iz Centra za transplantaciju jetre KBC-a Zagreb. Sa našom gošćom razgovarat ćemo kako se pripremiti za liječnički pregled.</p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;">Svi upisani u Klub pacijenata dobit
će poveznicu za spajanje na e-mail adresu s kojom su se registrirali dan prije održavanja druženja.</p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p></div></div>
<div class="definition-parent"><span><table align="center" cellspacing="0" class="floated-none" role="presentation" style="float: none; text-align: center; border: medium; border-spacing: 0px;" width="100%">
<tbody><tr style="border-spacing: 0px;">
<td align="center" style="padding: 0px; border-spacing: 0px;">
<a class="aw-image-link" href="https://www.rijetkebolestijetre.hr/klub-pacijenata/" rel="noopener noreferrer" style="color: rgb(52, 152, 219);"><img alt="" class="model" height="750" src="https://hostedimages-cdn.aweber-static.com/MjI3NzcyOA==/optimized/51890766317b46439c5503b01919af2e.png" style="display: block; height: 750px; width: 600px;" width="600"/></a>
</td>
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<div class="text-element paragraph"></div></div>
<div class="definition-parent"><span><table align="center" cellspacing="0" class="floated-none" role="presentation" style="float: none; text-align: center; border: medium; border-spacing: 0px;" width="100%">
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<a class="aw-image-link" href="https://www.rijetkebolestijetre.hr/klub-pacijenata/" rel="noopener noreferrer" style="color: rgb(52, 152, 219);"><img alt="" class="model" height="750" src="https://hostedimages-cdn.aweber-static.com/MjI3NzcyOA==/optimized/2fc076ce280345b6a44e040a64c93373.png" style="display: block; height: 750px; width: 600px;" width="600"/></a>
</td>
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<div class="definition-parent"><!--Text Element-->
<div class="text-element paragraph"><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;">Ako se još niste uključili u Klub, a htjeli biste upoznati druge osobe koje boluju od rijetkih bolesti jetre ili nekoga tko čeka ili je prošao transplantaciju jetre pridružite nam se na online druženju. </p><p style="text-align:
justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;">Klub pacijenata je mjesto gdje imate priliku razmijeniti iskustva s drugima koji prolaze isto što i vi. Mogu nam se pridružiti i članovi obitelji.😀</p><p style="color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p></div></div>
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<div class="text-element paragraph"><p style="font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;">Snimke dosadašnjih predavanja pronađite na našem YouTube kanalu!</p></div></div>
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<a href="https://www.youtube.com/@rijetkebolestijetre/" style="color: rgb(255, 255, 255); font-family: Helvetica, Arial, sans-serif; font-weight: 600; text-decoration: none;">Snimka predavanja</a>
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<div class="text-element paragraph"><p style="text-align: center; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"><strong>Uključite se u rad Zaklade za rijetke bolesti jetre!</strong></p><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;">Rad
Zaklade ne čine samo projekti i aktivnosti, već ga čine ljudi koji daruju svoje vrijeme, znanje, kontakte ili financijsku podršku. </p><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px;
line-height: 1.25em;"><strong>Možete nam se pridružiti na različite načine:</strong></p><ul><li style="text-align:justify;">volontiranjem u aktivnostima Zaklade,</li><li style="text-align:justify;">možete podijeliti vlastitu priču ili stručno znanje,</li><li style="text-align:justify;">donacijom koja koja će omogućuiti podršku oboljelima i njihovim obiteljima,</li><li style="text-align:justify;">dijeliti naše objave na društvenim mrežama,</li><li style="text-align:justify;">uključiti se u grupe
podrške i istraživanja,</li><li style="text-align:justify;">povezati nas s novim partnerima koji mogu pomoći.</li></ul><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;">Javite nam se na e-mail <a href="mailto:info@rijetkebolestijetre.hr" style="color: rgb(52, 152,
219);">info@rijetkebolestijetre.hr</a> ako želite doprinijeti našoj misiji! </p><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p></div></div>
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<a class="aw-image-link" href="https://www.rijetkebolestijetre.hr/podrska-koja-traje/" rel="noopener noreferrer" style="color: rgb(52, 152, 219);"><img alt="" class="model" height="503" src="https://hostedimages-cdn.aweber-static.com/MjI3NzcyOA==/optimized/8822fff196c54d9e9fd58837af3cb5eb.png" style="display: block; height: 503px; width: 600px;" width="600"/></a>
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<div class="text-element paragraph"><p style="font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p><p style="font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;">Svi smo barem jednom bili kod liječnika, dobili nalaz koji nas je zabrinuo i osjetili strah kad ne znaš što slijedi.</p><p style="font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"><br/>Za oboljele od
rijetkih bolesti jetre i transplantirane taj osjećaj traje svaki dan.</p><p style="font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p><p style="font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;">Vaša donacija omogućuje razgovore, povezuje oboljele i donosi znanje koje daje sigurnost, te stvara podršku koja traje. <img class="image_resized" src="https://hostedimages-cdn.aweber-static.com/MjI3NzcyOA==/original/7f12429816e142588a01d95f868d10e2.png" style="width:15px;"/></p><p style="font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p><p style="font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"><strong>Donirajte danas</strong>: <a href="https://www.rijetkebolestijetre.hr/podrska-koja-traje/?fbclid=IwZXh0bgNhZW0CMTAAYnJpZBEwbE1tbU9NNE1lcTh4R0QxS3NydGMGYXBwX2lkEDIyMjAzOTE3ODgyMDA4OTIAAR7e6a1grsMPtOIm4GLLzVV7XFAsHTGv2-1LkgWw0hRvBAHKMGqj0-7Uw9-jCQ_aem_BUlBZXBHaWtBob0S1U40qg" rel="noopener noreferrer" style="color: rgb(52, 152, 219);" target="_blank"><span style="color:#1155CC;">https://www.rijetkebolestijetre.hr/podrska-koja-traje/</span></a>.</p><p style="font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p><p style="font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;">Skenirajte QR kod putem moblinog bankarstva za uplatu donacije.</p><figure class="image image_resized" style="width:231px;"><img alt="" src="https://www.rijetkebolestijetre.hr/wp-content/uploads/2025/10/qrcode-a02eada1-b0df-4d69-a0f4-f1e6bbd5d095.png"/></figure></div></div>
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<div class="text-element paragraph"><p style="text-align: center; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;">Pratite nas putem kanala na društvenim mrežama!</p><p style="text-align: center; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p></div></div>
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<div> </div><div align="center" id="aweber_container" style="background-color:#ffffff; width:100% !important"><div id="aweber_rem" style="box-sizing:border-box; color:#000000 !important; font-family:Helvetica,Arial,sans-serif !important; font-size:12px !important; line-height:16px; margin:0px; max-width:600px; padding:0px 8px; width:100%"><!--[if gte mso 9]><table width="600" style="color: #000000;font-family: Helvetica, Arial, sans-serif;font-size: 12px;line-height: 16px;"><tr><td style="padding:8px;"><![endif]--><div class="rem_align" style="text-align:center;"><span style="color:#000000 !important"><br/><br/>17 Ul. Svete Ane<br/>
Samobor Zagrebačka županija 10430<br/>
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Blagdani su vrijeme kada ostajemo jedni uz druge
2025-12-23T04:00:11-05:00
2025-12-23T04:20:24-05:00
tag:rijetkebolestijetre.optin.com,2021:Post/28805040
Podrška koja donosi osjećaj da nitko nije sam. Zaklada za rijetke bolesti jetre pruža edukaciju, podršku i zagovaranje za oboljele od rijetkih bolesti…
<span class="aw-preheadertext" style="color: #ffffff; display: none; font-size: 0; line-height: 0; margin: 0; padding: 0; visibility: hidden;">Podrška koja donosi osjećaj da nitko nije sam.</span><div class="aw-preheaderspacer" style="display: none; max-height: 0; overflow:
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<div class="text-element paragraph"><p style="text-align: center; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"><i>Zaklada za rijetke bolesti jetre pruža edukaciju, podršku i zagovaranje za oboljele od rijetkih bolesti jetre, raka jetre, osobe koje su transplantirale jetru i njihove obitelji s ciljem poboljšanja kvalitete života i osiguravanja pravovremenog pristupa odgovarajućoj zdravstvenoj skrbi.</i></p></div></div>
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<div class="text-element paragraph"><p style="color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;">Dragi članovi, podržavatelji i prijatelji Zaklade,</p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px;
margin: 0px;">blagdani su vrijeme kada se najviše vraćamo onome što je zaista važno, bliskosti, razumijevanju i osjećaju da nismo sami.</p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;">Za mnoge koji žive s rijetkim bolestima jetre, rakom jetre i transplantiranima, blagdani mogu donijeti i dodatnu težinu: umor, neizvjesnost,
pitanja bez brzih odgovora. </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;">Upravo zato vaša podrška ima toliku vrijednost. Ona znači da iza svake priče, svake brige i svakog tihog straha stoji zajednica koja vidi, sluša i ostaje.</p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px;
margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;">Hvala vam što ste ove godine bili uz pacijente i njihove obitelji kroz povjerenje, riječi podrške, dijeljenje informacija i konkretna djela. </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;">Zajedno
gradimo prostor u kojem rijetko nije nevidljivo, a ljudsko iskustvo ima svoje mjesto.</p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;">U nadolazećim blagdanima želimo vam mir, toplinu i trenutke predaha. Neka nova godina donese više sigurnosti, više razumijevanja i više razloga za nadu za sve nas.</p><p style="text-align:
justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;">S poštovanjem,</p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;">Antonija Šimunković, upraviteljica<br/>Zaklada za rijetke bolesti
jetre</p><p style="color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p></div></div>
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Predavanje Wilsonova bolest I Klub pacijenata
2025-11-11T06:11:24-05:00
2025-11-11T06:20:22-05:00
tag:rijetkebolestijetre.optin.com,2021:Post/28502552
Predavanje Wilsonova bolest I Klub pacijenata Zaklada za rijetke bolesti jetre pruža edukaciju, podršku i zagovaranje za oboljele od rijetkih bolesti…
<span class="aw-preheadertext" style="color: #ffffff; display: none; font-size: 0; line-height: 0; margin: 0; padding: 0; visibility: hidden;">Predavanje Wilsonova bolest I Klub pacijenata </span><div class="aw-preheaderspacer" style="display: none; max-height: 0; overflow:
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<a class="aw-image-link" href="https://www.rijetkebolestijetre.hr/" rel="noopener noreferrer" style="color: rgb(52, 152, 219);"><img alt="Zaklada za rijetke bolesti jetre" class="model" height="123" src="https://hostedimages-cdn.aweber-static.com/MjI3NzcyOA==/optimized/9016358f0c364843a85f3eae9fe9a271.png" style="display: block; height: 123px; width: 270px;" width="270"/></a>
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<div class="text-element paragraph"><p style="text-align: center; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"><i>Zaklada za rijetke bolesti jetre pruža edukaciju, podršku i zagovaranje za oboljele od rijetkih bolesti jetre, raka jetre, osobe koje su transplantirale jetru i njihove obitelji s ciljem poboljšanja kvalitete života i osiguravanja pravovremenog pristupa odgovarajućoj zdravstvenoj skrbi.</i></p></div></div>
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<div class="text-element paragraph"><p style="text-align: center; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: center; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"><span style="color:#E21220;"><strong>Poziv na online predavanje o Wilsonovoj bolesti – </strong></span></p><p style="text-align: center; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"><span style="color:#E21220;"><strong>27.11.2025. u 18 sati</strong></span></p></div></div>
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<a class="aw-image-link" href="https://www.rijetkebolestijetre.hr/online-predavanje-wilsonova-bolest-27-11/" rel="noopener noreferrer" style="color: rgb(52, 152, 219);"><img alt="Online predavanje o Wilsonovoj bolesti – 27.11.2025." class="model" height="748" src="https://hostedimages-cdn.aweber-static.com/MjI3NzcyOA==/optimized/b34380f0e4bb41129fae540754378d57.png" style="display: block; height: 748px; width: 598px;" width="598"/></a>
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<div class="text-element paragraph"><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"><strong>Pozivamo vas na online predavanje “Wilsonova bolest” koje će održati Vibor Šeša, dr. med.</strong>, Centar za transplantaciju jetre, Referentni centar za kronične bolesti jetre, KBC Zagreb.</p><p style="text-align: justify;
color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;">Predavanje će se održati u <strong>četvrtak, 27.11.2025. u 18 sati</strong> putem platforme <strong>Zoom</strong>.</p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding:
0px; margin: 0px;">Wilsonova bolest je rijetki nasljedni poremećaj zbog kojeg se bakar nakuplja u jetri i može dovesti do oštećenja jetre i drugih organa. Na predavanju ćete saznati više o:</p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><ul><li style="text-align:justify;">što je Wilsonova bolest</li><li style="text-align:justify;">simptomima i dijagnostičkim postupcima</li><li style="text-align:justify;">mogućnostima liječenja
i praćenja</li><li style="text-align:justify;">životu s dijagnozom</li></ul><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;">Predavanje je namijenjeno oboljelima, članovima obitelji i svima koji žele znati više o ovoj rijetkoj bolesti.</p></div></div>
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<a href="https://www.rijetkebolestijetre.hr/online-predavanje-wilsonova-bolest-27-11/" style="color: rgb(255, 255, 255); font-family: Helvetica, Arial, sans-serif; font-weight: 600; text-decoration: none;">Prijavite se!</a>
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<a class="aw-image-link" href="https://www.rijetkebolestijetre.hr/klub-pacijenata/" rel="noopener noreferrer" style="color: rgb(52, 152, 219);"><img alt="" class="model" height="738" src="https://hostedimages-cdn.aweber-static.com/MjI3NzcyOA==/optimized/c856f798270b43dda5158737e3e631cc.png" style="display: block; height: 738px; width: 590px;" width="590"/></a>
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<div class="text-element paragraph"><p style="color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;">U studenome se družimo online u<strong> srijedu 26.11.2025. u 18 sati.</strong></p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28, 28);
line-height: 1.5em; padding: 0px; margin: 0px;">Ako se još niste uključili u Klub, a htjeli biste upoznati druge osobe koje boluju od rijetkih bolesti jetre ili nekoga tko čeka ili je prošao transplantaciju jetre pridružite nam se na online druženju. </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;">Klub pacijenata je
mjesto gdje imate priliku razmijeniti iskustva s drugima koji prolaze isto što i vi. Mogu nam se pridružiti i članovi obitelji.😀</p><p style="color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p></div></div>
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<div class="text-element paragraph"><p style="text-align: center; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: center; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"><span style="color:#E21220;"><strong>Izdana brošura o transplantaciji jetre – informacije za pacijente i članove obitelji</strong></span></p><p style="text-align: center; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin:
0px;"> </p></div></div>
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<a class="aw-image-link" href="https://www.rijetkebolestijetre.hr/izdana-brosura-o-transplantaciji-jetre-informacije-za-pacijente-i-clanove-obitelji/" rel="noopener noreferrer" style="color: rgb(52, 152, 219);"><img alt="" class="model" height="851" src="https://hostedimages-cdn.aweber-static.com/MjI3NzcyOA==/optimized/0cfbcb92f5bf47acb9db6095d4317522.png" style="display: block; height: 851px; width: 596px;" width="596"/></a>
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<div class="text-element paragraph"><p style="color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;">Briga za pacijente ne prestaje izlaskom iz ambulante, već tada za mnoge tek počinje najteži dio puta. Kako bismo olakšali taj put izdali smo <strong>brošuru o transplantaciji jetre</strong>, namijenjenu pacijentima i njihovim obiteljima.</p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;">Brošura ‘’Transplantacija jetre – brošura za pacijente i članove obitelji’’ napravljena je sa svrhom educiranja osoba koje se nalaze u terminalnoj fazi bolesti jetre i članova njihovih obitelji o procesu transplantacije jetre od trenutka početka pripreme za stavljanje na listu za
transplantaciju, same transplantacije do života nakon transplantacije jetre.</p><p style="color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p></div></div>
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<a class="aw-image-link" href="https://www.youtube.com/watch?v=t6vW7Ub0Npk&t=197s" rel="noopener noreferrer" style="color: rgb(52, 152, 219);"><img alt="" class="model" height="332" src="https://hostedimages-cdn.aweber-static.com/MjI3NzcyOA==/optimized/95d920c02ea1486586c5973ab3763d09.png" style="display: block; height: 332px; width: 600px;" width="600"/></a>
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<div class="text-element paragraph"><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;">Povodom Europskog dana darivanja organa, tkiva i stanica predstavili smo brošuru ''Transplantacija jetre - brošura za pacijente i članove obitelji''. </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;">Snimku predstavljanja pogledajte na našem Youtube kanalu.</p><p style="text-align:
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<div class="text-element paragraph"><p style="text-align: center; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"><strong>Uključite se u rad Zaklade za rijetke bolesti jetre!</strong></p><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;">Rad
Zaklade ne čine samo projekti i aktivnosti, već ga čine ljudi koji daruju svoje vrijeme, znanje, kontakte ili financijsku podršku. </p><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px;
line-height: 1.25em;"><strong>Možete nam se pridružiti na različite načine:</strong></p><ul><li style="text-align:justify;">volontiranjem u aktivnostima Zaklade,</li><li style="text-align:justify;">možete podijeliti vlastitu priču ili stručno znanje,</li><li style="text-align:justify;">donacijom koja koja će omogućuiti podršku oboljelima i njihovim obiteljima,</li><li style="text-align:justify;">dijeliti naše objave na društvenim mrežama,</li><li style="text-align:justify;">uključiti se u grupe
podrške i istraživanja,</li><li style="text-align:justify;">povezati nas s novim partnerima koji mogu pomoći.</li></ul><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;">Javite nam se na e-mail <a href="mailto:info@rijetkebolestijetre.hr" style="color: rgb(52, 152,
219);">info@rijetkebolestijetre.hr</a> ako želite doprinijeti našoj misiji! </p><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p></div></div>
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<div class="text-element paragraph"><p style="font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p><p style="font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;">Svi smo barem jednom bili kod liječnika, dobili nalaz koji nas je zabrinuo i osjetili strah kad ne znaš što slijedi.</p><p style="font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"><br/>Za oboljele od
rijetkih bolesti jetre i transplantirane taj osjećaj traje svaki dan.</p><p style="font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p><p style="font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;">U Hrvatskoj ne postoji sustavna podrška nakon izlaska iz bolnice. Oboljelima od rijetkih bolesti jetre i onima koji su transplantirali jetru nema tko objasniti što dalje, ni kako živjeti s bolešću.</p><p style="font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p><p style="font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;">Vaša donacija omogućuje da oboljeli s manje straha žive s bolešću. <img class="image_resized" src="https://hostedimages-cdn.aweber-static.com/MjI3NzcyOA==/original/7f12429816e142588a01d95f868d10e2.png" style="width:15px;"/></p><p style="font-size: 18px; color: rgb(76, 76, 76); margin: 0px;
padding: 0px; line-height: 1.25em;"> </p><p style="font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;">Donirajte danas: <a href="https://www.rijetkebolestijetre.hr/podrska-koja-traje/?fbclid=IwZXh0bgNhZW0CMTAAYnJpZBEwbE1tbU9NNE1lcTh4R0QxS3NydGMGYXBwX2lkEDIyMjAzOTE3ODgyMDA4OTIAAR7e6a1grsMPtOIm4GLLzVV7XFAsHTGv2-1LkgWw0hRvBAHKMGqj0-7Uw9-jCQ_aem_BUlBZXBHaWtBob0S1U40qg" rel="noopener noreferrer" style="color: rgb(52, 152, 219);" target="_blank"><span style="color:#1155CC;">https://www.rijetkebolestijetre.hr/podrska-koja-traje/</span></a>.</p></div></div>
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Predavanje Primarni sklerozirajući kolangitis I brošura Transplantacija jetre
2025-10-21T09:45:47-04:00
2025-10-21T09:45:47-04:00
tag:rijetkebolestijetre.optin.com,2021:Post/28354484
Predavanje PSC I Klub pacijenata I Snimka predstavljanje brošure Transplantacija jetre Zaklada za rijetke bolesti jetre pruža edukaciju, podršku i…
<span class="aw-preheadertext" style="color: #ffffff; display: none; font-size: 0; line-height: 0; margin: 0; padding: 0; visibility: hidden;">Predavanje PSC I Klub pacijenata I Snimka predstavljanje brošure Transplantacija jetre</span><div class="aw-preheaderspacer" style="display: none; max-height: 0; overflow:
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<a class="aw-image-link" href="https://www.rijetkebolestijetre.hr/" rel="noopener noreferrer" style="color: rgb(52, 152, 219);"><img alt="Zaklada za rijetke bolesti jetre" class="model" height="123" src="https://hostedimages-cdn.aweber-static.com/MjI3NzcyOA==/optimized/9016358f0c364843a85f3eae9fe9a271.png" style="display: block; height: 123px; width: 270px;" width="270"/></a>
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<div class="text-element paragraph"><p style="text-align: center; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"><i>Zaklada za rijetke bolesti jetre pruža edukaciju, podršku i zagovaranje za oboljele od rijetkih bolesti jetre, raka jetre, osobe koje su transplantirale jetru i njihove obitelji s ciljem poboljšanja kvalitete života i osiguravanja pravovremenog pristupa odgovarajućoj zdravstvenoj skrbi.</i></p></div></div>
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<div class="text-element paragraph"><p style="text-align: center; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: center; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"><span style="color:#E21220;"><strong>Poziv na online predavanje o primarnom sklerozirajućem kolangitisu, 29.10.2025. u 18 sati</strong></span></p></div></div>
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<a class="aw-image-link" href="https://www.rijetkebolestijetre.hr/online-predavanje-primarni-sklerozirajuci-kolangitis-29-10-2025/" rel="noopener noreferrer" style="color: rgb(52, 152, 219);"><img alt="" class="model" height="733" src="https://hostedimages-cdn.aweber-static.com/MjI3NzcyOA==/optimized/91b270c1948b4d5994c46662eee4cda3.png" style="display: block; height: 733px; width: 586px;" width="586"/></a>
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<div class="text-element paragraph"><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;">U listopadu, 29.10. svake godine obilježava se dan svjesnosti o PSC-u. Tom prigodom, pozivamo vas na online predavanje <strong>“Primarni sklerozirajući kolangitis”</strong> koje će održati prof. dr. sc. Anna Mrzljak, dr. med., FEBHG,
voditeljica Centra za transplantaciju jetre KBC-a Zagreb.</p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;">Predavanje će se održati u <strong>srijedu 29.10.2025. u 18 sati</strong> putem platforme Zoom.</p></div></div>
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<a class="aw-image-link" href="https://www.rijetkebolestijetre.hr/klub-pacijenata/" rel="noopener noreferrer" style="color: rgb(52, 152, 219);"><img alt="" class="model" height="728" src="https://hostedimages-cdn.aweber-static.com/MjI3NzcyOA==/optimized/e14b1a41da934e8c9651c96dc7f994b7.png" style="display: block; height: 728px; width: 582px;" width="582"/></a>
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<div class="text-element paragraph"><p style="color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;">U listopadu se družimo online iznimno u <strong>četvrtak 30.10.2025. u 18 sati.</strong></p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28,
28); line-height: 1.5em; padding: 0px; margin: 0px;">Ako se još niste uključili u Klub, a htjeli biste upoznati druge osobe koje boluju od rijetkih bolesti jetre ili nekoga tko čeka ili je prošao transplantaciju jetre pridružite nam se na online druženju. </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;">Klub pacijenata je
mjesto gdje imate priliku razmijeniti iskustva s drugima koji prolaze isto što i vi. Mogu nam se pridružiti i članovi obitelji.😀</p><p style="color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p></div></div>
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<div class="text-element paragraph"><p style="text-align: center; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: center; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"><span style="color:#E21220;"><strong>Izdana brošura o transplantaciji jetre – informacije za pacijente i članove obitelji</strong></span></p><p style="text-align: center; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin:
0px;"> </p></div></div>
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<a class="aw-image-link" href="https://www.rijetkebolestijetre.hr/izdana-brosura-o-transplantaciji-jetre-informacije-za-pacijente-i-clanove-obitelji/" rel="noopener noreferrer" style="color: rgb(52, 152, 219);"><img alt="" class="model" height="829" src="https://hostedimages-cdn.aweber-static.com/MjI3NzcyOA==/optimized/0cfbcb92f5bf47acb9db6095d4317522.png" style="display: block; height: 829px; width: 580px;" width="580"/></a>
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<div class="text-element paragraph"><p style="color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;">Briga za pacijente ne prestaje izlaskom iz ambulante, već tada za mnoge tek počinje najteži dio puta. Kako bismo olakšali taj put izdali smo <strong>brošuru o transplantaciji jetre</strong>, namijenjenu pacijentima i njihovim obiteljima.</p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;">Brošura ‘’Transplantacija jetre – brošura za pacijente i članove obitelji’’ napravljena je sa svrhom educiranja osoba koje se nalaze u terminalnoj fazi bolesti jetre i članova njihovih obitelji o procesu transplantacije jetre od trenutka početka pripreme za stavljanje na listu za
transplantaciju, same transplantacije do života nakon transplantacije jetre.</p><p style="color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p></div></div>
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<a class="aw-image-link" href="https://www.youtube.com/watch?v=t6vW7Ub0Npk&t=197s" rel="noopener noreferrer" style="color: rgb(52, 152, 219);"><img alt="" class="model" height="332" src="https://hostedimages-cdn.aweber-static.com/MjI3NzcyOA==/optimized/95d920c02ea1486586c5973ab3763d09.png" style="display: block; height: 332px; width: 600px;" width="600"/></a>
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<div class="text-element paragraph"><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;">Povodom Europskog dana darivanja organa, tkiva i stanica predstavili smo brošuru ''Transplantacija jetre - brošura za pacijente i članove obitelji''. </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;">Snimku predstavljanja pogledajte na našem Youtube kanalu.</p><p style="text-align:
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<div class="text-element paragraph"><p style="text-align: center; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"><strong>Uključite se u rad Zaklade za rijetke bolesti jetre!</strong></p><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;">Rad
Zaklade ne čine samo projekti i aktivnosti, već ga čine ljudi koji daruju svoje vrijeme, znanje, kontakte ili financijsku podršku. </p><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px;
line-height: 1.25em;"><strong>Možete nam se pridružiti na različite načine:</strong></p><ul><li style="text-align:justify;">volontiranjem u aktivnostima Zaklade,</li><li style="text-align:justify;">možete podijeliti vlastitu priču ili stručno znanje,</li><li style="text-align:justify;">donacijom koja koja će omogućuiti podršku oboljelima i njihovim obiteljima,</li><li style="text-align:justify;">dijeliti naše objave na društvenim mrežama,</li><li style="text-align:justify;">uključiti se u grupe
podrške i istraživanja,</li><li style="text-align:justify;">povezati nas s novim partnerima koji mogu pomoći.</li></ul><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;">Javite nam se na e-mail <a href="mailto:info@rijetkebolestijetre.hr" style="color: rgb(52, 152,
219);">info@rijetkebolestijetre.hr</a> ako želite doprinijeti našoj misiji! </p><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p><p style="text-align: center; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"><span style="color:#E21220;"><strong>Zajedno stvaramo mrežu u kojoj nitko tko živi s rijetkom bolešću jetre nije sam.</strong></span></p><p style="text-align:
center; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p></div></div>
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<a class="aw-image-link" href="https://www.rijetkebolestijetre.hr" rel="noopener noreferrer" style="color: rgb(52, 152, 219);"><img alt="" class="model" height="104" src="https://hostedimages-cdn.aweber-static.com/MjI3NzcyOA==/original/4b78a7cd50c0453cb1271915aa260336.png" style="display: block; height: 104px; width: 206px;" width="206"/></a>
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<div class="text-element paragraph"><p style="font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"><span style="font-size:16px;">Skenirajte barkod putem mobilnog bankarstva. Otvorit će se uplatnica s ispunjenim podacima Zaklade za rijetke bolesti jetre i predloženim iznosom donacije od 5,00 eura. Iznos možete
izmijeniti i uplatiti iznos po želi.</span></p><p style="font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p><p style="text-align: center; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"><span style="color:#E21220;font-size:24px;"><strong>Hvala od srca! 💙</strong></span></p><p style="text-align: center; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height:
1.25em;"> </p></div></div>
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Samobor Zagrebačka županija 10430<br/>
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Predavanje Primarni sklerozirajući kolangitis
2025-10-19T18:00:39-04:00
2025-10-19T18:20:14-04:00
tag:rijetkebolestijetre.optin.com,2021:Post/28342445
Predavanje PSC I Klub pacijenata I Snimka predstavljanje brošure Transplantacija jetre Zaklada za rijetke bolesti jetre pruža edukaciju, podršku i…
<span class="aw-preheadertext" style="color: #ffffff; display: none; font-size: 0; line-height: 0; margin: 0; padding: 0; visibility: hidden;">Predavanje PSC I Klub pacijenata I Snimka predstavljanje brošure Transplantacija jetre</span><div class="aw-preheaderspacer" style="display: none; max-height: 0; overflow:
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<a class="aw-image-link" href="https://www.rijetkebolestijetre.hr/" rel="noopener noreferrer" style="color: rgb(52, 152, 219);"><img alt="Zaklada za rijetke bolesti jetre" class="model" height="123" src="https://hostedimages-cdn.aweber-static.com/MjI3NzcyOA==/optimized/9016358f0c364843a85f3eae9fe9a271.png" style="display: block; height: 123px; width: 270px;" width="270"/></a>
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<div class="text-element paragraph"><p style="text-align: center; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"><i>Zaklada za rijetke bolesti jetre pruža edukaciju, podršku i zagovaranje za oboljele od rijetkih bolesti jetre, raka jetre, osobe koje su transplantirale jetru i njihove obitelji s ciljem poboljšanja kvalitete života i osiguravanja pravovremenog pristupa odgovarajućoj zdravstvenoj skrbi.</i></p></div></div>
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<div class="text-element paragraph"><p style="text-align: center; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: center; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"><span style="color:#E21220;"><strong>Poziv na online predavanje o primarnom sklerozirajućem kolangitisu, 29.10.2025. u 18 sati</strong></span></p></div></div>
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<a class="aw-image-link" href="https://www.rijetkebolestijetre.hr/online-predavanje-primarni-sklerozirajuci-kolangitis-29-10-2025/" rel="noopener noreferrer" style="color: rgb(52, 152, 219);"><img alt="" class="model" height="733" src="https://hostedimages-cdn.aweber-static.com/MjI3NzcyOA==/optimized/91b270c1948b4d5994c46662eee4cda3.png" style="display: block; height: 733px; width: 586px;" width="586"/></a>
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<div class="text-element paragraph"><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;">U listopadu, 29.10. svake godine obilježava se dan svjesnosti o PSC-u. Tom prigodom, pozivamo vas na online predavanje <strong>“Primarni sklerozirajući kolangitis”</strong> koje će održati prof. dr. sc. Anna Mrzljak, dr. med., FEBHG,
voditeljica Centra za transplantaciju jetre KBC-a Zagreb.</p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;">Predavanje će se održati u <strong>srijedu 29.10.2025. u 18 sati</strong> putem platforme Zoom.</p></div></div>
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<a class="aw-image-link" href="https://www.rijetkebolestijetre.hr/klub-pacijenata/" rel="noopener noreferrer" style="color: rgb(52, 152, 219);"><img alt="" class="model" height="728" src="https://hostedimages-cdn.aweber-static.com/MjI3NzcyOA==/optimized/e14b1a41da934e8c9651c96dc7f994b7.png" style="display: block; height: 728px; width: 582px;" width="582"/></a>
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<div class="text-element paragraph"><p style="color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;">U listopadu se družimo online iznimno u <strong>četvrtak 30.10.2025. u 18 sati.</strong></p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28,
28); line-height: 1.5em; padding: 0px; margin: 0px;">Ako se još niste uključili u Klub, a htjeli biste upoznati druge osobe koje boluju od rijetkih bolesti jetre ili nekoga tko čeka ili je prošao transplantaciju jetre pridružite nam se na online druženju. </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;">Klub pacijenata je
mjesto gdje imate priliku razmijeniti iskustva s drugima koji prolaze isto što i vi. Mogu nam se pridružiti i članovi obitelji.😀</p><p style="color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p></div></div>
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0px;"> </p></div></div>
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<a class="aw-image-link" href="https://www.rijetkebolestijetre.hr/izdana-brosura-o-transplantaciji-jetre-informacije-za-pacijente-i-clanove-obitelji/" rel="noopener noreferrer" style="color: rgb(52, 152, 219);"><img alt="" class="model" height="829" src="https://hostedimages-cdn.aweber-static.com/MjI3NzcyOA==/optimized/0cfbcb92f5bf47acb9db6095d4317522.png" style="display: block; height: 829px; width: 580px;" width="580"/></a>
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<div class="text-element paragraph"><p style="color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;">Briga za pacijente ne prestaje izlaskom iz ambulante, već tada za mnoge tek počinje najteži dio puta. Kako bismo olakšali taj put izdali smo <strong>brošuru o transplantaciji jetre</strong>, namijenjenu pacijentima i njihovim obiteljima.</p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;">Brošura ‘’Transplantacija jetre – brošura za pacijente i članove obitelji’’ napravljena je sa svrhom educiranja osoba koje se nalaze u terminalnoj fazi bolesti jetre i članova njihovih obitelji o procesu transplantacije jetre od trenutka početka pripreme za stavljanje na listu za
transplantaciju, same transplantacije do života nakon transplantacije jetre.</p><p style="color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p></div></div>
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<div class="text-element paragraph"><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;">Povodom Europskog dana darivanja organa, tkiva i stanica predstavili smo brošuru ''Transplantacija jetre - brošura za pacijente i članove obitelji''. </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;">Snimku predstavljanja pogledajte na našem Youtube kanalu.</p><p style="text-align:
justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p></div></div>
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Izdana brošura o transplantaciji jetre
2025-10-06T01:30:33-04:00
2025-10-06T01:30:33-04:00
tag:rijetkebolestijetre.optin.com,2021:Post/28241872
Brošura Transplantacija jetre - online predstavljanje 13.10.2025. u 18 sati Zaklada za rijetke bolesti jetre pruža edukaciju, podršku i zagovaranje za…
<span class="aw-preheadertext" style="color: #ffffff; display: none; font-size: 0; line-height: 0; margin: 0; padding: 0; visibility: hidden;">Brošura Transplantacija jetre - online predstavljanje 13.10.2025. u 18 sati</span><div class="aw-preheaderspacer" style="display: none; max-height: 0; overflow:
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<a class="aw-image-link" href="https://www.rijetkebolestijetre.hr/" rel="noopener noreferrer" style="color: rgb(52, 152, 219);"><img alt="Zaklada za rijetke bolesti jetre" class="model" height="123" src="https://hostedimages-cdn.aweber-static.com/MjI3NzcyOA==/optimized/9016358f0c364843a85f3eae9fe9a271.png" style="display: block; height: 123px; width: 270px;" width="270"/></a>
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<div class="text-element paragraph"><p style="text-align: center; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"><i>Zaklada za rijetke bolesti jetre pruža edukaciju, podršku i zagovaranje za oboljele od rijetkih bolesti jetre, raka jetre, osobe koje su transplantirale jetru i njihove obitelji s ciljem poboljšanja kvalitete života i osiguravanja pravovremenog pristupa odgovarajućoj zdravstvenoj skrbi.</i></p></div></div>
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<a class="aw-image-link" href="https://www.rijetkebolestijetre.hr/izdana-brosura-o-transplantaciji-jetre-informacije-za-pacijente-i-clanove-obitelji/" rel="noopener noreferrer" style="color: rgb(52, 152, 219);"><img alt="" class="model" height="600" src="https://hostedimages-cdn.aweber-static.com/MjI3NzcyOA==/optimized/0cfbcb92f5bf47acb9db6095d4317522.png" style="display: block; height: 600px; width: 420px;" width="420"/></a>
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<div class="text-element paragraph"><p style="color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;">Briga za pacijente ne prestaje izlaskom iz ambulante, već tada za mnoge tek počinje najteži dio puta. Kako bismo olakšali taj put izdali smo <strong>brošuru o transplantaciji jetre</strong>, namijenjenu pacijentima i njihovim obiteljima.</p><p style="color: rgb(28, 28, 28);
line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;">Brošura ‘’Transplantacija jetre – brošura za pacijente i članove obitelji’’ napravljena je sa svrhom educiranja osoba koje se nalaze u terminalnoj fazi bolesti jetre i članova njihovih obitelji o procesu transplantacije jetre od trenutka početka pripreme za stavljanje na listu za transplantaciju, same transplantacije do života nakon transplantacije
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<div class="text-element paragraph"><p style="font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;">Pozivamo vas da nam se pridružite na online predstavljanju brošure o transplantaciji jetre koje ćemo održati <strong>13.10.2025. u 18 sati </strong>putem platforme Zoom.</p><p style="font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p><p style="font-size: 18px; color: rgb(76, 76, 76); margin: 0px;
padding: 0px; line-height: 1.25em;">Na panelu ćemo predstaviti brošuru, razloge nastajanja ovog edukacijskog materijala za pacijente i članove obitelji, te podijeliti iskustva pacijenata i transplantacijskog tima i pokazati zašto su informacije i podrška ključne u procesu transplantacije.</p><p style="font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p><p style="font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height:
1.25em;">Predstavljanjem brošure ”Transplantacija jetre” prigodno ćemo obilježiti Europski dan darivanja organa, stanica i tkiva koji se obilježava 11.10.2025.</p><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p></div></div>
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<div class="text-element paragraph"><p style="text-align: center; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"><strong>Uključite se u rad Zaklade za rijetke bolesti jetre!</strong></p><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;">Rad
Zaklade ne čine samo projekti i aktivnosti, već ga čine ljudi koji daruju svoje vrijeme, znanje, kontakte ili financijsku podršku. </p><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px;
line-height: 1.25em;"><strong>Možete nam se pridružiti na različite načine:</strong></p><ul><li style="text-align:justify;">volontiranjem u aktivnostima Zaklade,</li><li style="text-align:justify;">možete podijeliti vlastitu priču ili stručno znanje,</li><li style="text-align:justify;">donacijom koja koja će omogućuiti podršku oboljelima i njihovim obiteljima,</li><li style="text-align:justify;">dijeliti naše objave na društvenim mrežama,</li><li style="text-align:justify;">uključiti se u grupe
podrške i istraživanja,</li><li style="text-align:justify;">povezati nas s novim partnerima koji mogu pomoći.</li></ul><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;">Javite nam se na e-mail <a href="mailto:info@rijetkebolestijetre.hr" style="color: rgb(52, 152,
219);">info@rijetkebolestijetre.hr</a> ako želite doprinijeti našoj misiji! </p><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p><p style="text-align: center; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"><span style="color:#E21220;"><strong>Zajedno stvaramo mrežu u kojoj nitko tko živi s rijetkom bolešću jetre nije sam.</strong></span></p><p style="text-align:
center; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p></div></div>
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<a class="aw-image-link" href="https://www.rijetkebolestijetre.hr" rel="noopener noreferrer" style="color: rgb(52, 152, 219);"><img alt="" class="model" height="104" src="https://hostedimages-cdn.aweber-static.com/MjI3NzcyOA==/original/4b78a7cd50c0453cb1271915aa260336.png" style="display: block; height: 104px; width: 206px;" width="206"/></a>
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<div class="text-element paragraph"><p style="font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"><span style="font-size:16px;">Skenirajte barkod putem mobilnog bankarstva. Otvorit će se uplatnica s ispunjenim podacima Zaklade za rijetke bolesti jetre i predloženim iznosom donacije od 5,00 eura. Iznos možete
izmijeniti i uplatiti iznos po želi.</span></p><p style="font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p><p style="text-align: center; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"><span style="color:#E21220;font-size:24px;"><strong>Hvala od srca! 💙</strong></span></p><p style="text-align: center; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height:
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Samobor Zagrebačka županija 10430<br/>
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Mjesec PBC-a zatvaramo predavanjem
2025-09-23T05:40:24-04:00
2025-09-23T06:20:20-04:00
tag:rijetkebolestijetre.optin.com,2021:Post/28142565
Online predavanje PBC I Kako je bilo na PBC konferenciji za pacijente Zaklada za rijetke bolesti jetre pruža edukaciju, podršku i zagovaranje za…
<span class="aw-preheadertext" style="color: #ffffff; display: none; font-size: 0; line-height: 0; margin: 0; padding: 0; visibility: hidden;">Online predavanje PBC I Kako je bilo na PBC konferenciji za pacijente</span><div class="aw-preheaderspacer" style="display: none; max-height: 0; overflow:
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<a class="aw-image-link" href="https://www.rijetkebolestijetre.hr/" rel="noopener noreferrer" style="color: rgb(52, 152, 219);"><img alt="Zaklada za rijetke bolesti jetre" class="model" height="123" src="https://hostedimages-cdn.aweber-static.com/MjI3NzcyOA==/optimized/9016358f0c364843a85f3eae9fe9a271.png" style="display: block; height: 123px; width: 270px;" width="270"/></a>
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<div class="text-element paragraph"><p style="text-align: center; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"><i>Zaklada za rijetke bolesti jetre pruža edukaciju, podršku i zagovaranje za oboljele od rijetkih bolesti jetre, raka jetre, osobe koje su transplantirale jetru i njihove obitelji s ciljem poboljšanja kvalitete života i osiguravanja pravovremenog pristupa odgovarajućoj zdravstvenoj skrbi.</i></p></div></div>
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<div class="text-element paragraph"><p style="text-align: center; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: center; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"><span style="color:#30A542;"><strong>Klub pacijenata, srijeda 24.9.2025. u 18 sati</strong></span></p></div></div>
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<a class="aw-image-link" href="https://www.rijetkebolestijetre.hr/klub-pacijenata/" rel="noopener noreferrer" style="color: rgb(52, 152, 219);"><img alt="" class="model" height="600" src="https://hostedimages-cdn.aweber-static.com/MjI3NzcyOA==/optimized/5efb6056f0b8449db4f619126acca31c.jpeg" style="display: block; height: 600px; width: 480px;" width="480"/></a>
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<div class="text-element paragraph"><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;">U srijedu, 24.9.2025. u 18 sati održat će se rujansko online duženje Kluba pacijenata. Članice Kluba Slavica i Natasha održat će predavanje i ispričati nam o svojem iskustvu sudjelovanja na konferenciji za pacijente oboljele od
primarnog bilijarnog kolangitisa u Edinburghu. Svi upisani u Klub dobit će poveznicu dan prije predavanja na e-mail.</p><p style="text-align: justify; color: rgb(28, 28, 28); line-height: 1.5em; padding: 0px; margin: 0px;"> </p></div></div>
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<div class="text-element paragraph"><p style="text-align: center; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"><span style="color:#309AD4;"><strong>Online predavanje:„Primarni bilijarni kolangitis”, 30.9.2025. u 16:30 sati</strong></span></p><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p><p style="font-size: 18px; color: rgb(76, 76, 76); margin: 0px;
padding: 0px; line-height: 1.25em;">Pozivamo vas na online predavanje <strong>“Primarni bilijarni kolangitis”</strong> koje će održati prof. dr. sc. Ivica Grgurević, dr. med., FEBGH, FRCP (Lon), pročelnik Zavoda za gastroenterologiju, hepatologiju i kliničku prehranu, KB Bubrava.</p><p style="font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p><p style="font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height:
1.25em;">Predavanje će se održati u <strong>utorak 30.9.2025. u 16:30 sati</strong> putem platforme Zoom.</p><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p></div></div>
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<div class="text-element paragraph"><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;">Snimke svih dosadašnjih predavanja dostupne su na Youtube kanalu Zaklade <a href="https://www.youtube.com/@rijetkebolestijetre" rel="noopener noreferrer" style="color: rgb(52, 152, 219);" target="_blank"><span style="color:#E21220;"><strong>OVDJE</strong></span></a>.</p><p style="text-align: justify; font-size: 18px; color:
rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p></div></div>
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<div class="text-element paragraph"><p style="text-align: center; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"><strong>Uključite se u rad Zaklade za rijetke bolesti jetre!</strong></p><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;">Rad
Zaklade ne čine samo projekti i aktivnosti, već ga čine ljudi koji daruju svoje vrijeme, znanje, kontakte ili financijsku podršku. </p><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px;
line-height: 1.25em;"><strong>Možete nam se pridružiti na različite načine:</strong></p><ul><li style="text-align:justify;">volontirnjem u aktivnostima Zaklade,</li><li style="text-align:justify;">možete podijeliti vlastitu priču ili stručno znanje,</li><li style="text-align:justify;">donacijom koja koja će omogućuiti podršku oboljelima i njihovim obiteljima,</li><li style="text-align:justify;">dijeliti naše objave na društvenim mrežama,</li><li style="text-align:justify;">uključiti se u grupe
podrške i istraživanja,</li><li style="text-align:justify;">povezati nas s novim partnerima koji mogu pomoći.</li></ul><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;">Javite nam se na e-mail <a href="mailto:info@rijetkebolestijetre.hr" style="color: rgb(52, 152,
219);">info@rijetkebolestijetre.hr</a> ako želite doprinijeti našoj misiji! </p><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p><p style="text-align: center; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"><span style="color:#E21220;"><strong>Zajedno stvaramo mrežu u kojoj nitko tko živi s rijetkom bolešću jetre nije sam.</strong></span></p><p style="text-align:
center; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p></div></div>
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<a class="aw-image-link" href="https://www.rijetkebolestijetre.hr" rel="noopener noreferrer" style="color: rgb(52, 152, 219);"><img alt="" class="model" height="104" src="https://hostedimages-cdn.aweber-static.com/MjI3NzcyOA==/original/4b78a7cd50c0453cb1271915aa260336.png" style="display: block; height: 104px; width: 206px;" width="206"/></a>
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<div class="text-element paragraph"><p style="font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p><p style="text-align: justify; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"><span style="font-size:16px;">Skenirajte barkod putem mobilnog bankarstva. Otvorit će se uplatnica s ispunjenim podacima Zaklade za rijetke bolesti jetre i predloženim iznosom donacije od 5,00 eura. Iznos možete
izmijeniti i uplatiti iznos po želi.</span></p><p style="font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"> </p><p style="text-align: center; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height: 1.25em;"><span style="color:#E21220;font-size:24px;"><strong>Hvala od srca! 💙</strong></span></p><p style="text-align: center; font-size: 18px; color: rgb(76, 76, 76); margin: 0px; padding: 0px; line-height:
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<div> </div><div align="center" id="aweber_container" style="background-color:#ffffff; width:100% !important"><div id="aweber_rem" style="box-sizing:border-box; color:#000000 !important; font-family:Helvetica,Arial,sans-serif !important; font-size:12px !important; line-height:16px; margin:0px; max-width:600px; padding:0px 8px; width:100%"><!--[if gte mso 9]><table width="600" style="color: #000000;font-family: Helvetica, Arial, sans-serif;font-size: 12px;line-height: 16px;"><tr><td style="padding:8px;"><![endif]--><div class="rem_align" style="text-align:center;"><span style="color:#000000 !important"><br/><br/>17 Ul. Svete Ane<br/>
Samobor Zagrebačka županija 10430<br/>
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Zajedno gradimo podršku za 2026.
2025-07-09T04:01:29-04:00
2025-07-09T04:20:09-04:00
tag:rijetkebolestijetre.optin.com,2021:Post/27572926
Sve kreće od vas. Ispunite kratki upitnik i uključite se u oblikovanje podrške. Zaklada za rijetke bolesti jetre pruža edukaciju, podršku i…
<span class="aw-preheadertext" style="color: #ffffff; display: none; font-size: 0; line-height: 0; margin: 0; padding: 0; visibility: hidden;">Sve kreće od vas. Ispunite kratki upitnik i uključite se u oblikovanje podrške.</span><div class="aw-preheaderspacer" style="display: none; max-height: 0; overflow:
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<div class="definition-parent"><div class="text-element"><p> </p><p> </p><p style="text-align:center;"><span style="font-size:18px;"><i>Zaklada za rijetke bolesti jetre pruža edukaciju, podršku i zagovaranje za oboljele od rijetkih bolesti jetre, raka jetre, osobe koje su transplantirale jetru i njihove obitelji s ciljem poboljšanja kvalitete života i osiguravanja pravovremenog pristupa odgovarajućoj zdravstvenoj skrbi.</i></span></p></div></div>
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<div class="definition-parent"><div class="text-element"><h2 style="text-align:center;"><span style="color:#c710e8;">Zajedno planiramo 2026. godinu</span></h2><p> </p><p style="text-align:justify;"><span style="font-size:18px;">Svaka osoba koja živi s rijetkom bolešću jetre ili rakom jetre, koja čeka ili je prošla transplantaciju, kao i svaka obitelj nosi svoju priču i potrebe.</span></p><p style="text-align:justify;"><br/><span style="font-size:18px;">Zato ne pretpostavljamo što
vam je potrebno već pitamo vas. Planiramo aktivnosti Zaklade za 2026. i želimo ih oblikovati zajedno s vama.</span></p></div></div>
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<div class="definition-parent"><div class="text-element"><p> </p><p style="text-align:justify;"><span style="font-size:18px;">Ako ste već sudjelovali u nekoj od naših aktivnosti, bili na webinaru ili radionici, koristili peer podršku, posjetili Klub pacijenata ili nam se javili za savjet, pozivamo vas da ispunite upitnik za dosadašnje korisnike. Recite nam što vam je bilo korisno, što možemo poboljšati i što vam je još potrebno: </span></p></div></div>
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<!--[if mso]> <![endif]--><a href="https://forms.gle/yJuF5E6r3Mu7rBap9" style="font-size: 16px; font-family: Open Sans, Helvetica, Arial, sans-serif; color: #FFFFFF; text-decoration: none; text-decoration: none; -webkit-border-radius: 4px; -moz-border-radius: 4px; border-radius: 4px; padding: 8px 14px; border: 1px solid #E83124; display: inline-block;" target="_blank"><span style="font-size: 16px; font-family: Open Sans, Helvetica, Arial, sans-serif; color:
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<div class="definition-parent"><div class="text-element"><p> </p><p style="text-align:justify;"><span style="font-size:18px;">Ako nas tek upoznajete, a živite s rijetkom bolešću jetre, čekate transplantaciju, imate iskustvo s rakom jetre, transplantirani ste, član ste obitelji ili zdravstveni djelatnik koji želi nešto predložiti, ispunite upitnik i predložite aktivnosti koje su vam potrebne: </span></p></div></div>
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<!--[if mso]> <![endif]--><a href="https://forms.gle/44XcYR7mQi1RLuTb7" style="font-size: 16px; font-family: Open Sans, Helvetica, Arial, sans-serif; color: #FFFFFF; text-decoration: none; text-decoration: none; -webkit-border-radius: 4px; -moz-border-radius: 4px; border-radius: 4px; padding: 8px 14px; border: 1px solid #E83124; display: inline-block;" target="_blank"><span style="font-size: 16px; font-family: Open Sans, Helvetica, Arial, sans-serif; color:
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<div class="definition-parent"><div class="text-element"><p style="text-align:center;"><span style="font-size:18px;"><strong>💫 </strong></span><span style="color:#30A542;font-size:22px;"><strong>Sve kreće od Vas.</strong></span><span style="color:#258135;font-size:22px;"><strong> </strong></span></p><p> </p><p style="text-align:center;"><span style="color:#22582a;font-size:18px;"><strong>Kada se uključite, zajedno stvaramo podršku koja ima smisla, jer podrška raste iz
zajednice.</strong></span></p><p> </p><figure class="image"><img alt="Zajednica Zaklade za rijetke bolesti jetre okuplja oboljele, obitelji i stručnjake u podršci i edukaciji" src="https://www.rijetkebolestijetre.hr/wp-content/uploads/2024/04/zaklada-za-rijetke-bolesti-jetre-06.jpg?w=600&h=300" style="border-radius: 12px; max-height: 300px; max-width: 600px; border: 0px; height: auto; line-height: 100%; outline: none; padding: 0px;"/></figure><p> </p></div></div>
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<div class="definition-parent"><div class="text-element"><p style="text-align:center;"><span style="font-size:22px;"><strong>Hvala od srca! 💙</strong></span></p><p style="text-align:center;"> </p></div></div>
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<div class="definition-parent"><div class="text-element"><div><div><p style="text-align:center;"><span style="font-size:18px;">Pratite nas putem kanala na društvenim mrežama!</span></p><p style="text-align:center;"><a href="https://www.facebook.com/rijetkebolestijetre" rel="noopener noreferrer" style="text-decoration-color: currentcolor;" target="_blank"><img alt="Facebook Icon" src="https://awas.aweber-static.com/images/message-editor/social/brand/none/facebook.png" style="border:
0px; height: auto; line-height: 100%; max-width: 100%; outline: none; padding: 0px;"/></a> <a href="https://www.instagram.com/rijetkebolestijetre" rel="noopener noreferrer" style="text-decoration-color: currentcolor;" target="_blank"><img alt="Instagram Icon" src="https://awas.aweber-static.com/images/message-editor/social/brand/none/instagram.png" style="border: 0px; height: auto; line-height: 100%; max-width: 100%; outline: none; padding: 0px;"/></a> <a href="https://www.linkedin.com/company/zaklada-za-rijetke-bolesti-jetre-croatian-rare-liver-foundation/" rel="noopener noreferrer" style="text-decoration-color: currentcolor;" target="_blank"><img alt="LinkedIn Icon" src="https://awas.aweber-static.com/images/message-editor/social/brand/none/linkedin.png" style="border: 0px; height: auto; line-height: 100%; max-width: 100%; outline: none; padding: 0px;"/></a> <a href="https://www.youtube.com/@rijetkebolestijetre" rel="noopener noreferrer" style="text-decoration-color:
currentcolor;" target="_blank"><img alt="YouTube Icon" src="https://awas.aweber-static.com/images/message-editor/social/brand/none/youtube.png" style="border: 0px; height: auto; line-height: 100%; max-width: 100%; outline: none; padding: 0px;"/></a></p> <table><tbody></tbody></table></div></div></div></div>
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<div> </div><div align="center" id="aweber_container" style="background-color:#ffffff; width:100% !important"><div id="aweber_rem" style="box-sizing:border-box; color:#000000 !important; font-family:Helvetica,Arial,sans-serif !important; font-size:12px !important; line-height:16px; margin:0px; max-width:600px; padding:0px 8px; width:100%"><!--[if gte mso 9]><table width="600" style="color: #000000;font-family: Helvetica, Arial, sans-serif;font-size: 12px;line-height: 16px;"><tr><td style="padding:8px;"><![endif]--><div class="rem_align" style="text-align:center;"><span style="color:#000000 !important"><br/><br/>17 Ul. Svete Ane<br/>
Samobor Zagrebačka županija 10430<br/>
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